Netflix is casting a light on a rare disease. Pearl Jam’s frontman is raising cash to cure it.

An organization started by Pearl Jam frontman Eddie Vedder and his wife, Jill, is using venture philanthropy to finance a ...

Knuth family part of documentary with Eddie Vedder

A Fox Valley family has teamed up with Pearl Jam frontman Eddie Vedder for a documentary to raise awareness on a rare skin ...

Eddie Vedder’s new Netflix doc raises awareness of rare skin disorder

What is Epidermolysis Bullosa? Eddie Vedder’s new Netflix documentary raises awareness of heartbreaking skin condition - The Pearl Jam singer co-founded the EB Research Partnership to help treat and c ...
Hosted on MSN

What is Butterfly Skin: Know all about Epidermolysis Bullosa

Epidermolysis Bullosa, also colloquially known as butterfly skin disease, a rare genetic condition that makes your skin very fragile. While the symptoms usually show up in babies or young children, ...
MedCity News

Chiesi Rare Skin Disease Drug Acquired in Billion Dollar Deal Wins FDA Approval

The rare inherited disorder epidermolysis bullosa, or EB, leads to skin so fragile that it tears like tissue paper. The resulting wounds and blisters are slow to heal and prone to infection. On ...
Local 12 WKRC Cincinnati

Pedals for EB: Local man biking 500 miles to raise awareness of rare skin disease

CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...
Business Wire

BPGbio Receives FDA Rare Pediatric Disease Designation for its Investigational Treatment for Epidermolysis Bullosa

BOSTON--(BUSINESS WIRE)--BPGbio, Inc., a leading biology-first, AI-powered, clinical stage biopharma focused on mitochondrial biology and protein homeostasis, today announced that the U.S. Food and ...
Healio

FDA approves topical Filsuvez for epidermolysis bullosa

Please provide your email address to receive an email when new articles are posted on . Filsuvez is a topical gel made from a dry extract from two species of birch bark. A phase 3 trial found complete ...
Yahoo

Star-Studded Rock4EB! Concert Raises Over $1 Million for 'Butterfly' Skin Disease Epidermolysis Bullosa

ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...
Medical Xpress

Skin and Connective Tissue Diseases: News and Research on Epidermolysis Bullosa Dystrophica

Patients with severe dystrophic epidermolysis bullosa, or EB, have skin so fragile, the slightest touch can lead to blistering and, eventually, large, open wounds that never heal, causing immense pain ...
Healio

FDA grants BPGbio rare pediatric disease designation for epidermolysis bullosa treatment

Please provide your email address to receive an email when new articles are posted on . BPM31510T previously received orphan drug designation. Phase 2/ 3 trials are expected to commence in 2025. The ...